Study Sheds Light on How Fibromyalgia Works

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edited November 2014 in Studies

Fibromyalgia article: Study Sheds Light on How Fibromyalgia WorksStudy Sheds Light on How Fibromyalgia Works

Fibromyalgia patients’ brains react differently to stimulation, new research has revealed, providing insight into how fibromyalgia works.

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Comments

  • I pretty much could have told you this from my daily life: things that SHOULDN'T hurt, do ---things that SHOULD hurt, often don't. And I also agree that FM in not the result of drugs. I never used anything stronger than an occasional Tylenol or Excedrin before the FM hit me in my 40's.
  • I was diagnosed 3 months ago with Fibro- after years of pain- and wondering if it was all in my head. I am 39 years old- always been active- no drugs ever- and bam- one day the pain starts and never ends. I have become a hermit to my home. no meds help. even meds to sleep don't.
  • I went undiagnosed for years since childhood with chronic fatigue syndrome. Always wondering why I was so tired much of the time. As far back as I can remember I always seemed to feel that way. Something always hurt. I think most people, like my mother, co-worker's, bosses, doctors all thought that I was faking these complaints so as to not work, but I always had a job. One morning I woke up startled because I was in such excruciating pain. It felt as though a house had fallen on top of me. The pain was unfathomable. My roommate put me in a warm bath to ease the pain. After awhile I attempted to get up out of the tub and found that I couldn't. It took what seems like forever to pull my body up over the ledge of the tub. I crawled on my stomach all the way back to my bed. Once there, I called my best friend and told her what was going on. She came over and drove me straight to the E.R. The doctors took blood and x-rays and came back and told me that they couldn't find anything wrong with me. How do you convince someone that there's something wrong when the experts can't see it, find it or prove it? So, I went through the steps of pain meds, muscle relaxers and anti-inflammatories. I went through the "Pain Mgmt" program. (what a joke). Still no diagnosis. I went through this for five years until one day, as I was getting my exam rooms ready for patients, (I was a Certified Medical Assistant) I happened to be working with an Internal Medicine doctor. Off the cuff I said out loud to her, I've done everything I'm supposed to do to take care of myself, why am I in so much pain? I'll never forget this: She started asking me questions as if she was examining me from 15 feet away. She had an opened book on her desk and was going down a list of symptoms. I had answered yes to every question she asked, and after being made to feel like I was a crazy hypochondriac, I finally had a diagnosis. She said that I had a text book case of something called Fibromyalgia. I had never heard of it before. This was in 2002. It wasn't until 2007 after I couldn't work any longer when I began my Lyrica treatment. I still live with excruciating pain every single day of my life. But, until more research is done, and there are new discoveries and new drugs on the market, I'll continue the Lyrica and Hydrocodone regimen. It's the only way I'm able to get out of bed every day. I still dream of how my life used to be before Fibromyalgia came into it, and I pray that one day there will be a breakthrough and they will find a cure.
  • MOLLY, I'm sorry. I understand It's taken 3 years, people look at me like I'm crazy. We don't look sick. After no answers for years with many specialists, went to Mayo Clinic and was finally diagnosed with Fibromyalgia, Chronic Fatigue, as Central Sensitization Disorder. I finally have a answer and or "lable" but the best they offer is Lyrica, hydrocodone, muscle relaxers, antidepressants. .I want my life back..
  • @Danielle Thanks for your reply Danielle. My husband's cousin is coming to visit us for two weeks around Thanksgiving. She was diagnosed with Fibromyalgia a year or so ago and said she can't wait to be able to be in the same room with someone she knows that suffers with the same thing. There must be some comfort in shared misery I guess. My husband is over and done with my "Fibromyalgia Thing.' There was a time when he was supremely supportive. But as time has gone by, he's just tired of it. Well, I AM TOO! But so far I haven't found a way to get rid of it. So, I just keep praying for a breakthrough!
  • I'm just so glad to see that people are taking it seriously. I'm 67 and started with this disease when I was around 30. I have been made to feel like I'm a looney toons over the years and even when I was diagnosed, my sister, who is in healthcare told me it's the "catch all" diagnosis. My family has never been supportive and always thought I was slacking but I worked the entire time til I reached 65! I have suffered from depression caused by the disease and from the doctors who made me feel like I was a slacker and from family who have never been supportive. The worst part of the disease to me is the disruption in sleep. I can handle most anything if I can sleep. But, it's so good to know that it's being taking seriously and studies are being done. Thank you!
  • I've lived and suffered with this dreadful disease for over forty long years! It has gotten so excruciating that I have begged God for mercy as I curled up in a fetal position, crying and desperate for pain relief. I've tried almost every treatment imaginable over the years, spent so much money in hopes of finding a way to a normal life. It's been a rough ride and a lifetime of excruciating pain! I would not wish this hell on my worst enemy! Recently, I saw a fibro specialist and she sent me for physical therapy. She said that I have myofascial pain and this particular therapy is specifically designed to loosen the overly taut muscles in a very gentle manner so as not to cause more pain. I still have pain at times but I have more good days than bad. I've also learned not to lift anything heavy because I will suffer the next day or two after. If any of you have the opportunity to try this physical therapy, I highly recommend it! It's the only treatment that has made a difference for me and I've tried almost everything.
  • I neglected to mention that this particular physical therapy is called Myofascial Release.
  • I've heard some people with terrible hand and wrist pains, that can't be explained. Recently I read an article that there has been a study that found that fibro... might start in the hands because of all the blood vessels. I haven't heard anymore about that research. I have severe fibro...and all the side kick illnesses. When I was about 12 I got xrays saw a doctor for bad wrist and hand pain. My mom didn't take me serious, doc said nothing was wrong. Through the years I was fatigued a lot, dizzy, hives. Immune problems, I would react to my own antibodies and end up covered in hives. Then I got in a car accident and wow full blown fibro... I didn't understand what was happening to me. My doc told me what he believed I had and that there was no cure. Back then about 25 years ago they didn't know much about it. I suppose we still don't. I can't find anything that helps. In addition to this do to my first car accident then my second I have very bad back and neck injuries and soft tissue damage. I have degenerative disks in my back and neck and transverse vertebrae in my lumbar-sacrum. I try to get relief, but my fibro gets very active severe pain when I get chiro or massage. My body is so out of alignment but it hurts to get it balanced. I feel for all of you out there with this terrible disorder, I hope you find peace and relief from your pain.
  • @kimgib
    I too suffer with the same issues. Massage and chiropractic only cause more pain. I was in a few accidents that caused disc deterioration and lower and upper back and neck pain. I limp when I get stressed, and I am anxious sometimes even after taking my meds. I toss and turn at night because the pain med had worn off, but I refuse to take another. I know there is no cure, and our future looks dull, worse than dull, just blah, to the point I don't want to make plans because I don't know what's going to happen to me on any particular day. I have phantom pains where My past surgeries and injuries were, and it's so hard to predict. I live on meds, but only as needed and under direct doctor care.

    So now what? My life as I have known it is over. I do hope I find help on this site...

    I get very depressed because people without it think I'm lazy or fickle, I'm sure, because it is such a new diagnosis. .. anyway, I guess I'm not alone.
  • I am 36 years old and have suffered from severe pain almost my whole life. It started in my legs when I was between 10-11 years old but was told time after time it was growing pains. I struggled for years having excruciating pain in my legs,not being able to run as fast as the other kids. Be up and playing like I wanted to. My mom took me to several Dr.'s who did tests with negative results and they all said growing pains. At 18 I had an accident at work and was bedridden with a bad back injury. I was given pain meds and a tens unit. At 19 I started having bad hand pain in both hands. I was going to beauty college and had to drop out due to my hands freezing up and constantly being in pain. I had had my son already which was very hard at times considering at 8 months of age I became a single mother. The added stress of being so young, a divorce, and trying to raise a baby on my own made my pain even worse. I remarried at 21, had my first daughter and returned to work after over two years of being a stay at home mom. I still had a lot of pain and no answers for it. At this point I started having bad headaches, restless leg syndrome,feelings off hopelessness,thinking maybe the few Dr.'s that I had seen at this point were right..that it was all in my head. Three years after my first daughter was born I became pregnant with my second daughter, third child. I had seen several other Dr.'s by this point and they all had the same answer..there's nothing wrong with you, it's in your head, your just lazy. I gave up and said no more,I refuse to see anyone else. A friend told me about a ruemotologist several years later, so I decided to give one more chance. Six years ago I was finally diagnosed with fibromyalgia. Although I wasn't happy to hear there is no cure, I was relieved to finally know what was wrong with me,and that I wasnt crazy. I still have a lot of pain, I still have days all I want to do is lay in bed and cry, I still try different meds trying to find something that works. I am happy I'm not the only person dealing with this, I'm not alone..and that helps me to stay a little more positive everyday. One day maybe they will have a cure, maybe one day I will be pain free. Until then I will never let this disease define me..I will keep fighting, I will survive.
  • I am 65 and have suffered for 28 years with Fibro. That was before they even had a name for it. I am suffering more and more. I try to keep active but stay sick most of the time. I think the Fibro takes some of you immune system and destroys it too. I am having too many complaints to number.
  • why can't they just do this brain test to diagnose your fibromyalgia instead of all of this nay saying?
  • @tamaross Your story sounds just like mine! I too started feeling the pain way early, about the same time as you. The restless legs and all. Every doctor thought I was nuts. I found a rheumatologist a few months ago and was finally diagnosed with fibro as well. There's days (most days) it's unbearable. I truly admire your positive outlook, I myself am trying to as well, but I must say it's incredibly difficult!
  • LDN (low does Naltrexone) has helped much.
    You cannot take Oxy with it as it is an opioid blocker.
    You can take Tramadol.
    Cannibis oil (high CBD/ no THC so it's legal)
    B vits. heal the nerves (Methyl B12, Benfotiamine B1, and P-5-P B6)
    Organic/no GMO/fresh food diet.
    Eliminate sugar and wheat. Blessing to ALL!
  • @willie

    I have been on Naltrexone since November 2013...it does not seem to be as effective now...have you been on it long? Looking at taking Tramadol but have a very bad track record of side effects with meds and am afraid to try it. I am doing all the other supplements and dietary items you are doing also ...and starting to take supplements from Max.com ...taking cellgevity, Max'nfuse and Max ATP trial package to see if I have improvements. What is your experience with Tramadol? My pharmacist friend tells me it is the medicine to take for fibromyalgia pain...(she just attended a pain seminar)
  • I'm Going on 52 years old. I Discovered that my fibromyalgia is connected to some problems with the Brain... Wow. Scary. I'm not on any Medications at this time. There is so much out there to think about and decide what's the right choices... My Head has recently started getting worse. I Also have Degenerative Disc Disease, as well as irritable bowel syndrome. Had my Gallbladder removed. I use my Diet to help me and constant New Outlooks In My Life... I've also suffer from Anxiety attack and which has caused depression. I see a Arthritis, Sychiatrist, Medical Dr., And Counselor, I'm Also have had problems with cholesterol and triglycerides on an ongoing process. Doctors say Pills to Regulate, I say Diet.. I have successfully got my numbers down that way. But the Fog. Headaches and Pain of all things going on have been much much worse in past year.
  • @Drliz65 I'm having slot more myself. It's hard to find all the answers.. I'm going to ask that my brain is looked at... May Help.. That is if I can afford it... Keep looking up for your answers it's worth it. And Good Luck...
  • I'm Going on 52 years old. I Discovered that my fibromyalgia is connected to some problems with the Brain... Wow. Scary. I'm not on any Medications at this time. There is so much out there to think about and decide what's the right choices... My Head has recently started getting worse. I Also have Degenerative Disc Disease, as well as irritable bowel syndrome. Had my Gallbladder removed. I use my Diet to help me and constant New Outlooks In My Life... I've also suffer from Anxiety attack and which has caused depression. I see a Arthritis, Sychiatrist, Medical Dr., And Counselor, I'm Also have had problems with cholesterol and triglycerides on an ongoing process. Doctors say Pills to Regulate, I say Diet.. I have successfully got my numbers down that way. But the Fog. Headaches and Pain of all things going on have been much much worse in past year.
  • @LydiaKaren
    @willie

    I have been on Naltrexone since November 2013...it does not seem to be as effective now...have you been on it long? Looking at taking Tramadol but have a very bad track record of side effects with meds and am afraid to try it. I am doing all the other supplements and dietary items you are doing also ...and starting to take supplements from Max.com ...taking cellgevity, Max'nfuse and Max ATP trial package to see if I have improvements. What is your experience with Tramadol? My pharmacist friend tells me it is the medicine to take for fibromyalgia pain...(she just attended a pain seminar)
    I really like tramadol. Been on it for many years..And I ha e,tried many other pain meds as well as homeopathic things. Nothing is going to stop this pain, But find something to help. I have to take 2 sometimes to try and get the pain settled to a low roar. But normally 1 will help And ibuprofen with it. I have had morphine, lortab, and other narcotic pills, But for now it"s tramadol. Works best for me. Of course ther are times when nothing helps but sleep and not know the pain is there. Also I can't tolerate "any" of the antidepressants long enough for them to do any good. AND ,,,,Anyone going to come up with something to help this sweating ?????? There are times I can't leave the house for sweating !!!! Everything has been checked that effects it, blood test wise and normal. I am going crazy with this , can't get out of shower And get dressed, because of the sweat !
  • @Debra_Whelan1
    I have also had myofascial release. After three rounds of physical therapists, I found one that believes Fibro is a real condition. She performed myofascial release when I was able to handle manipulation (during my worse flares, even touching my skin is unbearable). This form of therapy helps me a lot. I would encourage anyone going to physical therapy to ask about it. The first 3 PTs did not recommend it. It was a waste of time. The last PT I saw was a God-send. The exercises and myofascial release have improved my quality of life. I am not pain free but much better.
  • @MariaT1_
    I'm really glad that the MPR has relieved much of your pain. More fibro sufferers need to become aware of it and reap the great benefits. It's so gentle but yet effective. For me, it took about five months of therapy for my muscles to finally allow themselves to relax. I was just about ready to give up on it when I felt a breakthrough and started feeling better. I'm currently not undergoing therapy but I at least know that I can turn to it if and when I can't take the pain.

    The other aspect I feel compelled to share is the importance of eating good, nutritious food, organic whenever possible and mostly a plant based diet, avoiding sugar. This means avoiding white bread, white potatoes, white rice and junk food. I also allow myself to eat fish, organic chicken, very little beef and NOTHING THAT IS PROCESSED OR IN A BOX. The quality of our food can't be stressed enough. I didn't GET this concept until a few months ago when I started eating well. I stopped the denial and adopted new and better eating habits. I always had an addiction to carbs and had the desire to graze all day in the kitchen. People who suffer from fibro have lots of gut problems so we tend to crave sugar! It was as if a magnet kept pulling me into my kitchen! Every day, I'd start a new diet and within a few hours, I'd cave in and then feel so guilty and bad about myself. It was a bit difficult to get used to eating mostly produce at first and in the beginning, I thought I might turn into a vegetable (haha!) but as time went on, I have grown to love my new eating plan and my fibro pain is decreasing every day! We need all the ammo we can muster to fight this beast inside of us so I say, let's bring out the big guns. I honestly could be the poster child for fibromyalgia. I've had a very long and difficult journey with this (roughly 45 years) so I'm talking from lots of experience. I hope you don't think I'm preaching but it's imperative to understand that if we heal our bodies from the inside, disease will not stand a chance!
  • @Molly

    Hi Molly, I can relate to everything you have said. I am on Cymbalta and rotate Vicodine and Tramadol for the pain as well. I am also on muscle relaxers and Mirapex for RLS with Trazodone at night to help me sleep. I was on Ambien for sleep as it worked so well I do admit in thee two years I was on Ambien I did have some weird happenings so I only took it right before bed to spare me any weird moments. After 2 years the doctor took me off of this so not to become so dependent on it to sleep and switched me to Trazodone. I don't sleep as well now but when the Trazodone works it helps a lot. I too pray that they find a cure and in my lifetime so I can see the joy in all the people I know and watch them get their life back!
  • MidNiteMidNite Member
    @lizzilou I have been having problems with sweating too.
  • MidNiteMidNite Member
    @DeltaJoan My family is not supportive too. They think that I'm always making excuses. I hate it when they tell me to do this and that to treat my pain. They always say "When I'm in pain, I do this....".... and they don't even have fibromyalgia. They don't even bother to know what kind of illness I am dealing with. It is so frustrating.
  • the brain study is not at all surprising. Not only is fibro a pain condition but also a sensory condition. Loud noise is unbearable because of extra sharp hearing.. Bright light is also intolerable. Taste is off, most things taste either too salty or too sweet. So much research is needed for this condition. I just don't know why more is not being done. I've had this condition since 1992 and still have constant pain. I take Tramadol and that is the only drug that gives me even a little relief. All of the other drugs caused my mentation to be compromised and I could not function.

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