The Struggle is Real

Hi my name is Lori Sharp-Elliott. I was diagnosed with fibro when I was 12 years old, the end of my 7th grade year. I had limes disease and mono in 6th grade, then I was in a car accident in 7th grade. Shortly afterwards I began having horrible pain in my legs. I was playing in a basketball game and collapsed in the middle of my game. After a while the pain spread all over my body. I remember thinking I was getting mono back. I was in severe pain and suffering from fatigue. My mom took me to the doctor and they said it's just growing pains. For about three months that summer I new something was really wrong with me but I couldn't get anyone to believe me. My parents just believed it was growing pains and told me it was normal to feel growing pains at my age. I ended up quiting softball and track and the swim team because I was in so much pain I wanted to die. My muscles felt like they were going to snap in half, I was experiencing muscles spasms everyday over and over again all over my body. I felt like a tornado was going on inside my body constantly with no relief at all. Finally, I started 8th grade and still no relief. My mom would drag me out of bed every morning and make me go to school. They thought I was beinging a baby and silly making that big of a deal with growing pains. My teacher got in contact with my mom, she was my Spanish teacher. She had talked to me about the pain I was experiencing so she understood what I was going through because she had a bad case of fibromyalgia. After listening to me she contacted my mom and told her that she felt I should go see her doctor. So my mom took me to see that Doctor who was an arthritis specialist. He ran me through every test possible and diagnosed me with 16 out of 18 tender points positive having a severe case of fibromyalgia and fatigue syndrome. I also had spinal problems with my Vertebrae not fully developed my discs where pretty bad and that's why it hard collapsed several times in my life. Also I had spina bifida and they said it was a miracle that I could walk. Now I have degenerative disc disease as well and scoliosis. I have had fibromyalgia for 24 years now and I have never had one second of relief from pain all over my body from head to toe. I'm 36. Everyday is a huge struggle and fight. At 15 I almost committed suicide because of the pain and fatigue. I went into 2 years of extreme depression and anxiety. The devil attacked me everyday my 8th and 9th grade year's and at the end of 9th grade I decided to end my life. I had had no relief from horrible horrible pain for 2 years and I felt I could live in that pain anymore. No one understood and people didn't know anything about it at that time so they thought you had something wrong with your head. I lost all of my friends because they didn't even care to understand. I couldn't play sports anymore. My mom didn't understand and treated me like I was fine and normal. I was pegged as being a baby and lazy. I was expected to do everything possible, go to school, have a part time job, run a mile in PE. THE kids made fun of me. Teachers didn't care except for one who was very supportive but pushed me a lot.
It's was a long hard road. I finally turned to God and was saved by my sophomore year and that's why i lived. God saved me from suicide. Ever since then I've basically just relied on my faith to get through life. I had 2 kids even though the doctor said it wasn't possible. My pregnancies were completely hell!!!! It was absolutely the worst thing I've ever endured. After my 2nd child I was told I can't have anymore kids and my tubes were tied. I wanted to be a stylist and was told by several doctors who specializes in fibro that I couldn't and my voc rehab counselor that I couldn't do it but I did. Anytime someone tells me I can't I try hard to prove them wrong. I got through school and it was so hard. I would come home in so much pain I couldn't hardly walk. But the next morning I would get up and do it again. Then I got my instructors licensed which is another 600 hours. I became a teacher. I have been a Cosmetology teacher for 15 years and every day is a huge struggle for me. I am now at 18 out of 18 tender points positive and have been told by several doctors that I have the worst case they've seen also massage therapist have said the same thing. I can't stand to be touched by a massage therapist. I've raised 4 boys and been a successful mother and business women and wife. Through God I have found comfort in pain.

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