Welcome to our new Community!

sherriesherrie New Life Outlook
Hello Fibromites! So excited to finally bring you an actual community forum where YOU get to choose what we talk about. Create an account and start a discussion or introduce yourself below! :)

Comments

  • Hi, i am Sue Vickers. I was diagnosed with fibromyalgia in 2003.
  • sherriesherrie New Life Outlook
    @fibrodaze Nice to meet you Sue! Sounds like you have quite a bit of experience then. What's the biggest thing you've learned?
  • Hi, I'm Teresa Smith. I was diagnosed with fibromyalgia in 2001. So excited to find this site. Hope to meet people from my area and make new friends.
  • just learn that is what and why my body has been hurting for the last seven years, this is pain like no pain . the tip of my fingers hurt like hell. hope to fine something to help the pain
  • Billie Wiseman 53 from Southeast Missouri. I was first told by a physician that I had MS in 2001. Went to a MS specialist in St. Louis, MO. He explained I have only the one pituitary tumor which after complete testing was diagnosed with fibromyalgia. Worked administrative job until no longer able to work. That was devastating due to my love of the type of work I did for 20 plus helping support my family. Since that time, my life is now daily medication with never a single pain free day.
  • The first meeting I went to I was the only male there. I have come to learn that only 10% of the fibro population is male. Just one more roadblock when talking to medical staff, most of whom, don't indorse this illness anyway. I'll just keep on trying to learn and deal with it on a day by day basis. Thanks - Jim
  • nana02nana02 Member
    edited October 2014
    Hello, I'm 49 years old, have been diagnosed with fibro since 2010 after a injury. I've had these symptoms since I was young but progress with stress and trauma. I haven't worked in over 3 years due to my health, taking care of my husband and mother whom is 84 y/o. I've worked in the medical field for over 20+ years and now I need the help. It's been hard dealing with the fibro changes physically and MENTALLY. I am very depress and feeling hopeless not able to help my family financially as I was the bread winner. I'm seeking counseling, specialist for my pain and it doesn't seem to be much helpful, since I don't have insurance so I'm limited in who I can see. I've tried home remedies and exercise to support myself. There are good and there are BAD DAYSSS! I'm glad I can vent here and read on there stories that may help me. God Be With me and us all.
  • Created to share my story. I contacted new life outlook and they haven't responded. I do not see my story on the page. It has been approx. 2 weeks. Any suggestions? Has anyone experienced the same problem?

    Thanks:)
  • sherriesherrie New Life Outlook
    @Yeni Hi Yeni, Can you please reach out to me directly at srohde@newlifeoutlook.com?
  • @sherrie . I prefer to communicate with you through this site. Would that be possible? Thank You.
  • Hi, I am Lynda, 67 years old and was diagnosed in 1998. Over the years before my correct diagnosis I was wrongly diagnosed with RA, and several other immune disorders. At least I now know why every thing hurts. Glad to find this group, live in an area where medical care is not very good and my NP does not believe in Fibro, refuses to put it on my records. Would love to find a new care provider but we live in an "underserved area" and to get good care I am going to have to go 50+ miles over the coastal range, which means snow in the winter.







    w
  • sherriesherrie New Life Outlook
    Sure @Yeni, I'll send you a private message. :)
  • I am so glad to have a place to come and share, and see I am certainly not alone! I am sorry that anyone has to deal with fibro, but glad we have each other!
    I am from Tuscaloosa (Northport) Alabama, and have had significant pain and other symptoms for about the last 5 years. I lost my daughter Holly, who was 20, in 2007 when she was killed by a drunk driver. So when the pain came on me like a wrecking ball, I just thought it was from grief. A lot of time in the bed, depression, inability to function normally day to day, and no desire to really get up and deal. But the pain became so intense about 3 years ago, I had to do something, I had started working again, and when I laid down in bed at night, my legs hurt so badly, I would lay there and cry. My husband would try rubbing them but it not only didn't help it was irritating. I also had begun falling quite a bit. Not even in places that made sense, but just falling down completely. Once after a fall my husband said I looked like I was in slow motion and didn't even try to catch myself! I broke the first bone I had ever broken and have since lost count at the times I have fallen. Three time in the last 2 weeks. I am now experiencing some significant pain in my left hip, and at times have had to almost be carried to the restroom or anywhere. I already take adderall for ADD, so brain fog is "kind of a gray area" because I don't know what is fibro fog, ADD, or a common symptom of grief. I do experience vertigo and uneasiness in my balance. I do SWEAT alot!! I take Cymbalta, which has helped me tremendously, but it does increase my already bad sweating. Mornings, which have always been my quiet time, are almost laughable. I get out of the bed only to be stopped at the midway point as it takes awhile to get all the way up. You know in our minds we never "feel" or think we are as old as we are, I am 52 btw, and it is hard to admit we can pop down on the floor to only be embarrassed when we can;t just POP back up! I do suffer from some depression and have for many years, but it is well controlled with the cymbalta, sunshine, and prayer!!! After losing my daughter to imagine living for many years with my loss was just not a desire. But, I have a son as well who is 26 and just married an amazing girl, they are soon moving to Birmingham which is 45 minutes away, and one day will have MY grandchildren so that outlook has changed! Holly is awaiting us in Heaven, and I desire to spend many more good years watching my son and DIL have children, play with those children and love on them, and I desire to do it as painless as I can!!
    So I feel blessed to have each of you here to understand, advise and encourage me, and hopefully I can encourage you!!
  • sherriesherrie New Life Outlook
    Welcome @danettelw! :)
  • Hello!
    My name is Shard'e. I was diagnosed with Fibromyalgia this year. I'm excited that I found a community that I can open up and share my experiences with!
  • AlyssaWinegardenAlyssaWinegarden New Life Outlook
    @Sublimelove420 We're so happy to have you! Thank you for joining us :) We'd love for you to share your story with all of us! If you're interested you can fill out the form below so we can feature it!

    https://fibromyalgia.newlifeoutlook.com/submit-your-story/

    Alyssa
  • chris07chris07 Member
    edited June 2017
    hello, i am new to this site. i was dx with fibro a few months ago. luckily i have a lot of support from family but i am tired of hurting everyday. my hands and feet are the worse. i use a heating pad or ice almost everyday to help with the pain. lately the back sides of my thighs hurt too...especially when walking. normal daily activities hurt...hope this site gives me some information and extra support that i can use

    chris
  • AlyssaWinegardenAlyssaWinegarden New Life Outlook
    @chris07 we're happy you found us! Welcome to the community :)

    -Alyssa
  • Hi, I'm Cindy Sue and I have Fibromyalgia. You're nodding your head aren't you because it sounds familiar doesn't it? I found myself chuckling while writing as if it was something you might hear in an anonymous type meeting, telling of some dark secrete. Having Fibro for 22+ years I often find myself going between looking for the lighter side of most anything, or if we're honest, to spurting out a few choice words that have no meaning other than to help release the stress/frustration/pain/etc. of a particular moment. You're nodding your head again aren't you? I'm a Type A personality, whose now living in a Type ZZZ body. I'm probably a lot like you; good days, bad days, and the days I wish would go away. It doesn't seem to matter any more how I got here, but that I try to make 'here' more compatible with me, my life and the person I have become. One thing I have learned over these many years of having Fibro and speaking to so many others, is whether it may be good or bad, it can cause you to change into someone you never thought you'd be. And finding acceptance of that one fact and stop grieving for my old self has been the hardest part of all. And I wonder now is this part of that wisdom I'm suppose to be getting as I am growing older, or has finally accepting my limitations finally bringing me the peace I needed to find to move forward? Are you nodding your head again?

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