I’m very lucky to have a really good support system in my family. My husband has been the greatest, and for that I feel very fortunate. I have known people whose marriages have come to an end because their spouse just couldn’t understand, or wouldn’t try to understand, what comes with this. My husband has never told me, "But you don't look sick," or "Just keep pushing yourself and you’ll be fine." I don't know what I would do without him and my two grown daughters, who have also come to my rescue more than once.
I have always done my very best to get myself up and out of bed every day. If I can't keep going very well after dressing and a warm shower then I may have to chill that day. I have had to quit working. I also have back issues but still try to stay active. I have been dealing with this for over 15 years but still will not give up on living as normal a life as I can. I will never give up on living life to my fullest.
I will never give up on living life to my fullest.
Love your body, learn your body and pace yourself.