My Story: Patricia

Subscribe to our Newsletter

We are building our Fibromyalgia community.

Sign up to receive updates.

New Life Outlook on FacebookSubscribe with Facebook

OR

What were the steps leading up to your diagnosis?

I was diagnosed almost 40 years ago. I don't really remember a lot, but there were a lot of appointments. My mom found an article about fibromyalgia, so I took it took it to my doctor. I was lucky to have found a doctor who believed, because at the time fibromyalgia was still being thought of as a "hysterical" illness.

What lifestyle changes have you needed to make?

I have had to "let" my husband do most of the housework, especially vacuuming and dishes. I watch that I don't overdo anything and have to remember that repetitive little things are as bad as one big thing!

Walking with purpose is easier than sauntering or standing still. I have to pace my shopping —more than two stores in a day will throw me into a flare.

Who has been there for you? How?

My family has always been supportive. My friends have been, too. I have been luckier than many.

Walking with purpose is easier than sauntering or standing still.

What accomplishment are you proud of?

I taught English in a continuation school for 34 years. When I would have to stay home for long periods of time, the staff started a pool about whether I would make it to retirement age! Well, I did! That's my accomplishment.

What accomplishment are you proud of?

I taught English in a continuation school for 34 years. When I would have to stay home for long periods of time, the staff started a pool about whether I would make it to retirement age! Well, I did! That's my accomplishment.

I would recommend a one-story house to all fibromyalgics!

I would recommend a one-story house to all fibromyalgics!

What's your advice to someone else living with Fibromyalgia?

Firstly, don't let fibromyalgia define you as a person.

Secondly, pay attention to your doctor, but make sure you have a doctor who believes that your pain is real. If you feel that your doctor is not taking you seriously, get a new one. Keep doing that until you find one who believes in you and with whom you are comfortable!

I can't stand massage or anything that vibrates. It sets me off.

Is there anything else we should know?

After so long a time with fibro, I have a regimen of meds that works for me. What works for some doesn't work for others. I can't stand massage or anything that vibrates. It sets me off. Also, I can't sit still long enough to have acupuncture.

About Patricia

My Story: Patricia

I will turn 65 on January 13. I taught English in a local continuation high school for 34 years before retiring in 2007. I have been married to the same supportive man for 38 years. We recently moved from Salinas, California, to the foothills of the Sierras, a little town called Applegate. I didn't realize how my Victorian home in Salinas affected me until we moved to our rambling ranch house. This house is so comfortable for me! I would recommend a one-story house to all fibromyalgics!

In July this year I had my second knee replacement, so now I have twin scars! Besides my knee replacements, I have had nine other surgeries — I guess that's a lot.

Along with my fibromyalgia I have IBS, osteoarthritis in all major joints, a bad case of restless legs syndrome (for which I take medication twice daily), as well as myriad other issues, some of which are related to the fibro.

I have recently been diagnosed with hyperuricemia (high uric acid levels), but have not had kidney stones nor gout. Because of this, I have had to adopt a vegetarian diet. It doesn't seem to have affected my fibro.

When I can, I enjoy crocheting, scrapbooking, and card making. I also enjoy gardening, but have had to give up a lot of it, because of all my health issues. Despite all my health issues, I feel like I am in pretty good health.

If anyone wants to get in contact with me, please send me a message at patfav4921@att.net

Share

We learn from each other

We all have a voice.
What's your story?

Submit your story