Patricia's Story

What were the steps leading up to your diagnosis?

I was diagnosed almost 40 years ago. I don't really remember a lot, but there were a lot of appointments. My mom found an article about fibromyalgia, so I took it took it to my doctor. I was lucky to have found a doctor who believed, because at the time fibromyalgia was still being thought of as a "hysterical" illness.

What lifestyle changes have you needed to make?

I have had to "let" my husband do most of the housework, especially vacuuming and dishes. I watch that I don't overdo anything and have to remember that repetitive little things are as bad as one big thing!

Walking with purpose is easier than sauntering or standing still. I have to pace my shopping —more than two stores in a day will throw me into a flare.

Who has been there for you? How?

My family has always been supportive. My friends have been, too. I have been luckier than many.

What accomplishment are you proud of?

I taught English in a continuation school for 34 years. When I would have to stay home for long periods of time, the staff started a pool about whether I would make it to retirement age! Well, I did! That's my accomplishment.

What's your advice to someone else living with Fibromyalgia?

Firstly, don't let fibromyalgia define you as a person.

Secondly, pay attention to your doctor, but make sure you have a doctor who believes that your pain is real. If you feel that your doctor is not taking you seriously, get a new one. Keep doing that until you find one who believes in you and with whom you are comfortable!

Is there anything else we should know?

After so long a time with fibro, I have a regimen of meds that works for me. What works for some doesn't work for others. I can't stand massage or anything that vibrates. It sets me off. Also, I can't sit still long enough to have acupuncture.