In 2009 I was diagnosed with fibromyalgia. Living with fibromyalgia hasn’t been an easy journey either. I was so scared because I had no idea what was wrong with me. I felt like I got run over by a truck and wearing clothes hurt. Before my diagnosis, I visited the hospital several times, and they still couldn’t figure out what was wrong with me. So, I became my own advocate. I kept researching until I found doctors that believed me and helped me during this hard time.
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In 2016, I was finally diagnosed with fibromyalgia. I was torn between despair over the thought of having a condition that there was no cure for and elation that I finally had an answer and it wasn't all in my head. Now I had an answer to a lifetime of feeling as if I were crazy. My doctor told me that fibromyalgia isn't life-threatening, and I replied, "That's where we disagree. If you are in constant, chronic pain, you ask yourself daily how much longer…
I've had fibromyalgia for many, many years. When I was around 12 or 13 years old, I had pain in both my legs usually at night. I am going to be 65 next year [and] I get so tired of dealing with this [because] the symptoms [are] hard to deal with, but you have to continue on. People may never be able to understand what we go through and sometimes you may have to be your own cheerleader. So, stay true to yourself and take…
I have been struggling with fibromyalgia since I was 10. Doctors just brushed it off as growing pains. I didn't get help until almost a year ago. I moved back to my hometown and got in touch with a primary care doctor. After waiting and waiting, for what we thought was just a checkup, turned out to be the start of my diagnosis process.
My symptoms started when I was 23. I was in so much pain and was exhausted. I went to my doctor and she took tests then told me it was all in my head and said I should speak to a therapist. I struggled for years not knowing what I had. I didn't go to the doctor for two years after my bad experience. When I went to the doctor again, my new doctor listened. I was diagnosed with fibromyalgia and started to see a…
I was 22 years old and fresh out of college. My back, neck, and shoulders always were so tight and sore. I would pull a muscle by doing simple things like sneezing or blowing my nose. I had injured my back and was in physical therapy. My physical therapist evaluated me and told me I had fibromyalgia. I drove home laughing and thought, "How could a fit, active 22-year-old have something like fibromyalgia?"
I'm so glad to have stumbled across this site. It feels good to know that somebody out there understands what I'm going through. I just found out I have fibromyalgia a couple of months ago. Along with this diagnosis, and the numerous doctors and specialists it took to find out, I have been in a lot of pain for the past few years. Along with my fibromyalgia diagnosis, I also found out I have COPD and emphysema. Once I finally knew the reasons for all…
In 1992 at the age of 26, I was in a bad car wreck. My pain initially was in my neck and shoulder area. (I had also broken my back in 2 different places.) The pain then announced itself on the surface of my skin, everywhere. My doctor found that every trigger spot was painful. He couldn't be certain, but when chronic fatigue surfaced along with my chronic pain, he figured that's what I had. Full-fledged trauma induced fibromyalgia and myofascial pain syndrome. Every trigger…
I had my first child when I was 20. Shortly after she was born, I started having severe fatigue and random joint pain. I felt like a hypochondriac because one day it might be my right knee in a brace and the next day my left wrist. Finally, when I was around 25 years old, my family doctor sent me to a young rheumatologist, and he is the doctor that diagnosed me with fibromyalgia. I was so relieved and excited to finally have a name…
In my early 30's I would not be able to sleep at night due to restless leg syndrome, I would hurt all over and get angry if someone touched me in the arms or other parts of my body because it hurt so much. I started having back pain and leg pain. I would get dizzy, and I had two doctors believe that I had MS. One of them sent me to a neurologist who tested me and told me that I had fibromyalgia. Though…
It took three years to get diagnosed with severe fibromyalgia. All of my trigger points were incredibly tender. It took another three years to get on social security disability (the judge did not believe in this condition even though my file was 3" thick). No one understands what I am going through and how much extreme pain I am always in. So, don't listen to 'advice' from those who don't understand. Instead, find friends who accept you for who you are. I only have three…
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