I have been struggling with fibromyalgia since I was 10. Doctors just brushed it off as growing pains. I didn't get help until almost a year ago. I moved back to my hometown and got in touch with a primary care doctor. After waiting and waiting, for what we thought was just a checkup, turned out to be the start of my diagnosis process.
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My symptoms started when I was 23. I was in so much pain and was exhausted. I went to my doctor and she took tests then told me it was all in my head and said I should speak to a therapist. I struggled for years not knowing what I had. I didn't go to the doctor for two years after my bad experience. When I went to the doctor again, my new doctor listened. I was diagnosed with fibromyalgia and started to see a…
I was 22 years old and fresh out of college. My back, neck, and shoulders always were so tight and sore. I would pull a muscle by doing simple things like sneezing or blowing my nose. I had injured my back and was in physical therapy. My physical therapist evaluated me and told me I had fibromyalgia. I drove home laughing and thought, "How could a fit, active 22-year-old have something like fibromyalgia?"
I'm so glad to have stumbled across this site. It feels good to know that somebody out there understands what I'm going through. I just found out I have fibromyalgia a couple of months ago. Along with this diagnosis, and the numerous doctors and specialists it took to find out, I have been in a lot of pain for the past few years. Along with my fibromyalgia diagnosis, I also found out I have COPD and emphysema. Once I finally knew the reasons for all…
In 1992 at the age of 26, I was in a bad car wreck. My pain initially was in my neck and shoulder area. (I had also broken my back in 2 different places.) The pain then announced itself on the surface of my skin, everywhere. My doctor found that every trigger spot was painful. He couldn't be certain, but when chronic fatigue surfaced along with my chronic pain, he figured that's what I had. Full-fledged trauma induced fibromyalgia and myofascial pain syndrome. Every trigger…
I had my first child when I was 20. Shortly after she was born, I started having severe fatigue and random joint pain. I felt like a hypochondriac because one day it might be my right knee in a brace and the next day my left wrist. Finally, when I was around 25 years old, my family doctor sent me to a young rheumatologist, and he is the doctor that diagnosed me with fibromyalgia. I was so relieved and excited to finally have a name…
In my early 30's I would not be able to sleep at night due to restless leg syndrome, I would hurt all over and get angry if someone touched me in the arms or other parts of my body because it hurt so much. I started having back pain and leg pain. I would get dizzy, and I had two doctors believe that I had MS. One of them sent me to a neurologist who tested me and told me that I had fibromyalgia. Though…
It took three years to get diagnosed with severe fibromyalgia. All of my trigger points were incredibly tender. It took another three years to get on social security disability (the judge did not believe in this condition even though my file was 3" thick). No one understands what I am going through and how much extreme pain I am always in. So, don't listen to 'advice' from those who don't understand. Instead, find friends who accept you for who you are. I only have three…
I used to be a social butterfly and the go-to girl for fun. In 1999, my life as I knew it my dreams of my future was about to change forever drastically. My first diagnosis was mixed connective tissue disease, but quickly changed to fibromyalgia and over the years has manifested into many other issues. I have been through the beginning of fibromyalgia in the country, you know, before it got its own medical code which was to be the turn around for us fibromyalgia…
In 1986, I was electrocuted and had total body internal burns, according to Clifton Springs Hospital burn unit and was in semi-coma state for two months. Shooting pain continued throughout the year. After three months I realized my body was not able to 'bounce back' as my range of motion was down, according to the Myofascial Pain Clinic in PA. Although I tried hard as I could to return to work the pain was intensifying. Stiffness and tightness became more extreme. I currently see 3…
I finally decided to tell my doctor everything that was going on instead of downplaying my symptoms. The testing began, and on my 34th birthday, I was diagnosed with fibromyalgia. I already knew it deep down, but to hear it from my doctor, that was devastating. I was praying that I was just low in Vitamin B12 or something stupid. Of course, that wasn't it. The only positive thing that I gained from my diagnosis was understanding. Finally, so many things that I had been…
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