In 2009 I was diagnosed with fibromyalgia. Living with fibromyalgia hasn’t been an easy journey either. I was so scared because I had no idea what was wrong with me. I felt like I got run over by a truck and wearing clothes hurt. Before my diagnosis, I visited the hospital several times, and they still couldn’t figure out what was wrong with me. So, I became my own advocate. I kept researching until I found doctors that believed me and helped me during this hard time.
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I used to be a social butterfly and the go-to girl for fun. In 1999, my life as I knew it my dreams of my future was about to change forever drastically. My first diagnosis was mixed connective tissue disease, but quickly changed to fibromyalgia and over the years has manifested into many other issues. I have been through the beginning of fibromyalgia in the country, you know, before it got its own medical code which was to be the turn around for us fibromyalgia…
In 1986, I was electrocuted and had total body internal burns, according to Clifton Springs Hospital burn unit and was in semi-coma state for two months. Shooting pain continued throughout the year. After three months I realized my body was not able to 'bounce back' as my range of motion was down, according to the Myofascial Pain Clinic in PA. Although I tried hard as I could to return to work the pain was intensifying. Stiffness and tightness became more extreme. I currently see 3…
I finally decided to tell my doctor everything that was going on instead of downplaying my symptoms. The testing began, and on my 34th birthday, I was diagnosed with fibromyalgia. I already knew it deep down, but to hear it from my doctor, that was devastating. I was praying that I was just low in Vitamin B12 or something stupid. Of course, that wasn't it. The only positive thing that I gained from my diagnosis was understanding. Finally, so many things that I had been…
The first time I felt something was wrong with me was when I was talking with a client and couldn't remember what my job title was. I found finding myself unable to think clearly, a terrible pain in my back in between my shoulder blades up to my neck, and pain from the feel of clothing and blankets on my skin. After countless doctor visits, I was referred to a rheumatologist who diagnosed me with rheumatoid arthritis and fibromyalgia.
It began with periods of horrific waves of fatigue. Each doctor I sought out was convinced it was all in my mind, but I knew my pain and fatigue was real. I've tried various medications to manage my fatigue, but it had terrible side effects. I felt nothing helped. Today, I have made a complete change in my diet, and twice a week I go to physical therapy and I'm taking supplements and seeing a rheumatologist, naturopath, and chiropractor.
I began experiencing never-ending intense physical pain and fatigue. My pain was all over my body, but the intensity of that pain moved to different areas. I felt like I had rubber bands wrapped around my legs and concrete poured in my upper back and shoulder area. I sought massage therapy and chiropractic treatment for months, thinking it would go away. During one of my chiropractic visits my chiropractor said, "Your fibro is acting up." I didn't know what fibro was. I replied, “I don't…
I was a sickly child and had frequent bouts of widespread pain. I was told these were simply growing pains and would get better as I got older. I have had insomnia for as long as I can remember and I frequently suffered with fatigue. Around the age of 12 I became severely depressed. I have had bouts of depression as well as anxiety ever since. In my late teen years, the bouts of pain and fatigue became increasingly worse and more frequent. I was…
In 2010 I still was not aware that I had it, though I knew my mom and sister did; but not me, I'm healthy. I went to a pain clinic and was told that I had fibromyalgia symptoms. I would nod my head and think to myself, "Okay, I am in great pain, but what is it really?” I have seen many different physicians since 2010, who agree that I do indeed have this condition, but I was always thinking my pain was due to…
I am 24 years old, and this year will be 18 years I've been dealing with fibromyalgia. It all started when I was seven years old. I woke up one morning to brush my teeth and I couldn't squeeze the toothpaste out because my wrist hurt so badly. I didn't know why, I experienced severe body aches like growing pains all over my body. I told my mom that I was in so much pain and she said she would pray for me. But the…
I am a native Minnesotan. I majored in social work and criminal justice. I moved to Seattle, Washington and began working as a director of a work release. One beautiful, sunny afternoon in August of 1998 I was a passenger in a car accident. I was in extreme pain after the accident but continued to work. I was tested for everything and all tests came back negative. No one could tell me why I could not get better! My acute pain diagnosis was now my…
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